It’s Been a Month

It been a month since many others and I lost a very good friend. Jennie hoeft wasn’t just my friend she was my camp counselor. Since my first year at camp MASH (Make Arthirits Stop Hurting) at age eleven, I was scared because I didn’t know anyone and this would be the first time I’d be away from home. Jennie was the first person to greet me when I came off of the long Minnesota bus ride. The very first time I met her she ran up and gave me a hug. She had the brightest smile than anyone I ever knew. Since that very first day we grew closer, I barely left her side. She would never leave me out of activities even though I was in a wheelchair. Being said every time we used the elevator we would try to fit 15 girls plus a wheelchair into a small elevator leaving it to beep from being held to long. Everyday she would wake us up with her singing, but we didn’t care cause it was Jennie.
Her death has had a huge impact on people she knew and on the lupus committee. Jennie passed away from complications from Lupus. She was 27. The impact of Jennie showed on how many people attended to her funeral-over 500. Jennie was so young, even though she may have been in pain. She always had the brightest smile. She never let anyone down. She was always there for people.
My world and camp will never be the same, but I know we all will always live with her spirits in our hearts!
Jennie you taught me to live with high spirits and to always smile no matter what! From you favorite movie The Lion King Hakuna Matata and the circle of life, live without worry and live freely.

I leave you with our camp song that we always sing at our camp closing ceremony.

Sometimes in our lives

We all have pain, we all have sorrow

But if we are wise

We know that there’s always tomorrow

Lean on me when you’re not strong

And I’ll be your friend, I’ll help you carry on

For it won’t be long

‘Til I’m gonna need somebody to lean on

Please, swallow your pride

If I have things you need to borrow

For no one can fill those of your needs

That you won’t let show

You just call on me, brother, when you need a hand

We all need somebody to lean on

I just might have a problem that you’ll understand

We all need somebody to lean on

Lean on me when you’re not strong

And I’ll be your friend, I’ll help you carry on

For it won’t be long

‘Til I’m gonna need somebody to lean on.


  

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To the people who stared

Last week I was out to eat with my family at noodles and co. while we were there my mom started getting angry and I didn’t know why. All of a sudden she started talking to my dad and brother about a high school couple who was staring at us. At that time I just though whatever let it go its happened before. Then it got worse, they started to pointing and laughing at me. I just stayed quite they don’t know my story. The thing that got me angry was that I wasn’t the one to see it, it was my family who did. I didn’t want my mom to my a big deal out of it even though I know she should’ve. she said “I should just go up to them and take a picture, then post it on facebook and tell everyone about.” I didnt want that to happen, but when we got home I was so hurt and angry that, this situation had effected my family and has before.

Let me tell you something that night they didn’t hurt me, but they hurt my family. If you want to laugh and talk about me don’t do it in public and have it affect my family. I understand they were in high school and they don’t know my story, but they know right from wrong. This isn’t the first time something like this has happened. I’ve had a whole family (with little kids) stare and laugh at me. Just educate yourself or come up to me and ask me questions. just don’t laugh and stare.

Here are a couple different articles similar to my writing. http://www.huffingtonpost.com/ellen-seidman/a-letter-to-the-mom-who-stared-at-my-child_b_5354478.html

 

Excited, yet nervous 

So glad to be graduating this year! It has taken a lot to get to this moment, but I wouldn’t take anything back because it shaped me into the person I am today! Senior year is for the tears, facing the fears, loudin the cheers, you learn how close you are to some, and how far away you are to others. You’ll have you lasts and get ready for the firsts. Then look back on it and remember it forever. Got this in the mail a couple of days ago! Less than 120 days till graduation and less than 200 days till move in day! I’m super excited yet nervous! Proud to be an eagle!


  

Growing up and Losing

image.jpegAs we grow up we lose friends! It’s just the sad part of life! The friends we had in elementary school were no longer our friends in middle school and the friends we had in middle school were no longer our friends by the time we graduated! People just grow up or they don’t, we realize that they are there for us or not! We realize who is mature enough to handle life and grow up. Then there are the friends who have moved away and can be hours away and yet still keep in contact. As we grow up I’m still there for my friends who has stopped talking to me . I am so grateful for the friends who have stuck by side since my first day at Farmington, first day in middle school, first day in high school, and to all the friends who will be there when we cross that stage to get our diploma. Thank you and I will always be here for you!

To My Former Best Friend

Please Help 

image.jpegThere are just 27 days till the walk to cure juvenile arthritis aka JAM. Juvenile arthritis affect 300,000 children including me. I’ve had arthritis since I was 6 months old in 2007, 2 weeks before I was scheduled to have a stem-cell transplant I went into septic shock. Having going into septic shock I was in a coma for 2 months and in rehabilitation for another 2 months. After having rehabilitation I went back to school being able to go as much as I could while losing my toes, finger, hooked up to an IV, and losing my hair. But I kept going because I knew I had not just for myself, but for my family, my friends, classmates, teachers, nurses, doctors, and all the people I would meet in the future. I also stayed strong for the people I would have met when I am helping people in a similar story, I can’t wait to help people like me. In November I was excited to find out that I was accepted into Edgewood College to do just what I want to do. You can help children just like me, who have been diagnosed with arthritis by joining the walk to cure juvenile arthritis or by donating to the arthritis foundations. People with an autoimmune disease such as arthritis or lupus have struggles that a person shouldn’t have to struggle with such as showering, getting dressed, brushing their hair, walking, and spending time with friends and family. By donating you will help find a cure for arthritis or send a child to a very special camp. By walking you will raise awareness to this disease that not only affect adults but also children. Please donate or walk you have to do little but it will do a lot to those people with arthritis.Walk to Cure Arthritis

Disability Discrimination

imageGale Encyclopedia of American Law Americans with Disabilities Act (ADA) is a milestone for those with a disability. The ADA has been called “Bill Of Rights” for people with disabilities. About 20 percent of the U.S. population is disabled. The author of Associated Press article Disability Discrimination Claims Agency’s Agenda, Jennifer McDermott says the commission received more disability discrimination claims than sex, race, or age since early 1990s. I believe there is discrimination against people with disabilities in the workplace, schools, and in public. For disabled people it is very hard to find the right workplace, education, and accommodations. First, discrimination in the work place.

According to an article in The Associated Press a woman in Mankato Minnesota Laurie Goodnough is suing her former employment Baywood Home Care. Goodnough is suing because she was discriminated against and fired for being seen walking around with a cane and complaining. Goodnough has Fibromyalgia and Osteoarthritis these diseases limit her ability to walk and bend easily. The walking aid gives Goodnough her ability to bend and walk more easily. The problem with this is that Goodnough was an employee at the company since 2007. She was a good employee, but when other employees saw her with the cane they told the manager. She was doing exactly what she needed and did not do a poor job while working. According to an article Jennifer McDermott states that some employers do not know how to make accommodations, for employees with disabilities or even know what qualifies as a disability.  Other case also says that some employers are not hiring, promoting someone, or firing the employee, because of disability. Now you may ask your self, “How has the problem been solved before?”

Imagine you are put into a cage and you have autism, imagine how scared you are. This happened to an autistic boy. A report from ABC Premium News Federal Opposition Backs Calls for National Inquiry into Education An article called Disability Rights in Civil Rights in the United States says that the disability rights movement is still new with the civil rights movement. The movement reflects recognition that features contemporary society (physical and social) have worked, sometimes not meaning to, restrict rights and opportunities of those with disabilities. An article from Gale Encyclopedia of American law says the ADA is a law that is made up of five titles. The first title says that employers are not allowed to discriminate that are able to screen out people with disabilities or standards that have an effect against the person. The second title is that public services must be able towards disabilities. The third says that private business that provides accommodations cannot discriminate. The fourth title is that telecommunication companies cannot discriminate against people with disabilities. The fifth tile consist technical and miscellaneous provisions.  The ADA is what protects disabled americans from discrimination, yet it is still happening. Now what do we do with the children that have disabilities?

of Children with Disabilities After ACT Cage Incident. The ACT case is that a child with autism was put into two-meter by two-meter cage like structure made by pool fencing. Mr. Innes who deals with cases like ACT case says that “I think that the key issues here are both the lack of resources for schools and training for teachers, and just lack of awareness of teachers who might think that such actions are appropriate.” I believe that every teacher and student or class mate needs to be educated on the subject of disabilities of the person.

An article in Education: Meeting America’s Needs? Education for Special Needs Students says that in 1992 an act called Education for All Handicapped Children Act was renamed Individuals with Disabilities Education Act (IDEA).  IDEA was renamed and redefined in 2004. Terms added to IDEA are mental retardation, hearing impairments including deafness, speech or language impairments, visual impairments, and also including blindness. Other terms are serious emotional disturbance, orthopedic impairments, autism, traumatic brain injury, and other health impairments, or specific learning impairments.  Now you maybe asking yourself, “Is this what children need”?

An article in Gale Encyclopedia of American Law Disability Discrimination says, there is a law that was made in 1975, studies showed that more than half of all disabled children was not receiving appropriate public education. About one eight of those children was left out of public education all together. In 2006, over six million children had received special education because of IDEA. According to Gale Encyclopedia of American Law Disability Discrimination each child is covered by IDEA and is entitled to Individualized Educational Program (IEP). The IEP is developed by the parents, teachers, and doctors. IEPs identify the abilities and needs of the child. It outlines educational placement and services that address the needs. Today we have discussed discrimination of people and children with disabilities.

As you can see people with disabilities are discriminated against a lot in the workplace, school/education, and in public. People with disabilities are discriminated against a lot in the workplace, school/education, and in public. Twenty percent of the U.S. citizens have a disability of some sort. I urge all of you here today, not only think about discrimination, but think about who is being discriminated against, and where that is. If you see a disabled person being discriminated against let them know you support them, and let someone know about the situation.