Funding for Life and Purpose

https://www.gofundme.com/funding-for-life-and-purpose

Dear Reader,

My life has been a roller coaster of ups and downs, but one thing that has always been consistent(even when I had to miss some); my education. I was diagnosed with Systemic Juvenile Rheumatoid Arthritis when I was just six months old. Many people believe that arthritis only affects the joints, but the reality is, it affects your whole world.

My arthritis has not only affected my joints, but also my organs, and mentality of life. When I was ten I was two weeks away from having a stem cell transplant when my life was turned upside down. I had developed sepsis. I ended up being a coma for two months and rehabilitation for another two. Sepsis caused my toes and left fingertips to be necrotic, making them turn blue and fall off, all in a span of a year. While I was in a coma the doctors ended up doing an exploratory surgery on my abdomen to see if they could find the cause of sepsis. An early removal of staples caused my abdomen to reopen and become infected. I ended up having a wound VAC on for a year to close the wound. During the span of 1-3 years of recuperating I went to school trying my hardest to be at school as much as possible.

I promised myself that no matter what I would finish school trying my hardest. I believed, no matter what it took I was determined to earn a degree, whether that would be a meteorologist, doctor, child life specialist, or a photographer.  I had a dream and I was going to make it a reality! Middle school was a very hard time for me socially and mentally. I pushed through it with all my might, I just kept saying only 7, 6, and 5 more years till I’ll be a senior. I went to school even while I was healing from a total hip replacement. I was on so much pain medicine that I was driving into walls, and a full day at school became unsafe. So, again I was stuck at home when all I wanted was to be at school learning.

In high school, I once again had to conquer complications from my arthritis and my weaker immune system. My freshman year I had eight ear infections. I kept being put on antibiotics, oral than IV. I was going to school with a needle and a tube stuck out of my chest, but I was still determined. In the spring of that year I had a mastoidectomy. When the surgeons went to take it out they found that the infection had ate through my skull and I had cerebral spinal fluid leaking out of my ears. This put me on bed rest for two weeks where i had to lay flat. Though I persevered my way through high school, I still ended up missing a half of the school year. Even though I had As and Bs a couple Cs that year I was failed in two of my classes. I eventually made those classes up in summer school. I still feel as though, it was unjust to give me those since I was not given the same opportunities to keep up my grade. The rest of my high school career I knew I had to work extra hard. By the time I graduated in 2016 I had earned a 2.9 GPA and a spotlight student. I finally did it! Despite all the obstacles, I was able to get into my number one school; Edgewood College in Madison, Wisconsin.

At Edgewood I met many new people but felt secluded. I was even discriminated against by a teacher and not given the same opportunity of other students which affected my grade. I was five hours away from home. Every week my mom had to drive back and forth, sometimes in 24-hours for me to be able to get my 6 hour treatments for my arthritis or to spend one on one time helping and caretaking. The campus was really hard for me to get around on.

In the spring my family experienced a tremendous loss of my grandfather, as he was my step father’s employer his death was felt in multiple dimensions.  Even though I had successfully earned a 3.2 GPA, all the harder life situations had me thinking, my family needed me closer and I was ready for an different college experience. I had came to the conclusion that I would like to transfer to the University of Minnesota-Twin cities for my Sophomore year of College.

Than of course, life throws another challenge for me. Money. At the end of June we found out I could not apply to the University of Minnesota-Twin cities because of a financial mistake early in the year by my school, I now owed over $5,500 to Edgewood. I can not work, my mom earns a unlivable wage as my PCA, and due to the major death in the family we were already not financially well. I decided I would take off the fall of 2017 so we could figure out what to do.

Another bend in the river, in the fall I found out I needed an ankle fusion in January and the another after that is healed. Still unable to pull together the cash I need to get my transcripts released and with the fusion, I now had to take off the spring of 2018. With a plan, my specialists and I have figured out how to get me better off physically to start at the U of M in the fall. I am excited to have a new chance to experience college with more physical ability or at least less pain. I have risen to the challenge over and over. I have proved with ultimate strength and courage that I am able to meet my goals with complete and utter determination.

I am asking for help. I still need to find the money to pay back Edgewood, so I can apply for the University of Minnesota-Twin cities and pursue my education in Graphic Design. I am asking for your financial support in helping myself to realize a very possible dream and goal, earning my degree in Graphic Design. With your support I can give back to our communities in one of the most beautiful ways, capturing life moments in my personal perspective of photo artistry. My ambition is to support many organizations who give back to others, such as the Arthritis Foundation, and in doing so live the life I have been fighting for all along, a life of purpose. PLEASE DONATE. THE DEADLINE DUE DATE FOR THE APPLICATION IS JUNE 1ST.

Sincerely,

Arrian Madden an aspiring Graphic Designer.img_0675

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Jingle Bell Run

This year on my birthday december 10th i am partcipating in the Madison, WI Jingle Bell Run on behalf of the honoree my friend from camp MASH, Rachel Reed. I will be taking pictures of families with santa. For my birthday present I am asking for people to donate or to sign up an participate in the run!

http://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=1160711&supId=441266279&extSiteType=1

Long time…No talk

Im am sorry i haven’t posted in a long time. I have been very busy.

First, I did it. I graduated from high school with a G.P.A. of 3.2 which I never thought was capable. with how much school i missed from medical absences. I aced all my last senior classes. which most cannot say they did. I am proud to say i got a 3.2 because against all odds i did it. i defeated everyone that said i couldn’t. i succeed for everyone that stood by my side and said i could. even though a 3.2 may not be as good as a 3.5 or above it is still an honor. I worked harder than anyone else did to get that GPA with all odds against me.

Secondly, we celebrated. We had a graduation party. I invited people I went to school with, teachers, staff, friends from camp, family friends, and family. To be honest the people that came were the people who were most supportive of me. Whether it be harsher or softer than others, they still told me I was stronger than everyone believed and that i could  do it. I had teachers there who saw me at my worst and at my best. all of them were so proud of me. I had friends there who supported me through it all even through our fights. lastly my family, who never told me i could not do something. Everyone that came was so proud and supportive of me. I just wanted to say thank you.

Third, I celebrated with my parents. this summer i went on a cruise with my parents to the Bahamas. It was my graduation present. it was a long waited vacation away from home and the boys. We boarded the ship at Port Canaveral in Florida. the ship was much bigger than we thought, It was like a floating mall. I was so sore and my ankles were so swollen by the end of the first day, that we had to get a wheelchair. I only used it when we got off the ship. The first day we went to Freeport Bahamas. We didn’t have anything planned, so we decided to rent a car and go driving. we were supposed to go to nature center, but the guy who rented us the car gave us wrong directions, so we got lost. We were able to see the poor side of Freeport, where their houses were falling apart, and some were even living in boxes. We ended up finding the nature center, but it was $10 or $20. instead of doing that we went to an offshore beach. nobody was there besides us. it was so nice. The stop was Nassau. There we did a seaward explorer which is like a semi-submarine. We were able to see fish below the surface. We also walked around on the island. we went to Pirates Pub and Grill there I had my first alcoholic drink. Don’t worry it was legal. The next day was a day at sea. we just hung out  and and went to a few shows on the ship. To say the least it was a nice vacation with my parents.

Fourth, I was able to be camp M.A.S.H. (Make Arthritis Stop Hurting) volunteer photographer. In my past years as a camper I took pictures not just for me, but for my friends. The year I graduated from camp I took nearly 2,000 pictures. I very suddenly became the camp photographer. everyone would tell me I had to come back as a volunteer, but not as a counselor, but as the photographer. So this year I did. I ended up taking about the same amount of photos that i have in the past. Everyday the intern and I would upload some of the photos to the blog so parents saw what the kids were doing everyday. Everyday I would get comments about how awesome the pictures were. My goal was to capture everybody’s happiness and capabilities. I believe I accomplished that. I am also so happy that grew closer to the people I had already grown to love from the past. I also grown to love new people and hope to build our friendship as years go on.  I am so happy that was able to do exactly what they were looking for. I can’t wait till next year.

Lastly, I moved. Yes I moved 5 hours away to my dream college. After taking up our suburban and an enclosed trailer we started to head to madison a 5 hour long trip with 2 boys. It was nuts.  Edgewood College is in madison Wisconsin. It is private liberal art school. It also had my major Child Life. I am doing really good here with having a 3.3 GPA for my midterms. The class sizes here are really small the biggest class is of 30 people for psychology, but the professors are able to really get to know their students. My professors know me and  know what I need. Next week I’ll be registering for my second semester courses. I will be taking photography history (on the way to a photography minor), statistics, ENG. 110, a religion class, and choir. I also am very excited to announce that I am on the committee for Camp MASH. I will also be taking pictures for Madison, WI Jingle Bell Run for arthritis. I will be taking picture of families with Santa this day(which happens to be my birthday.) I would appreciate it if anybody can donate of join us on the run to cure Arthritis. http://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=1160711&supId=441266279&extSiteType=1

Thank you so much sorry i haven’t posted in a while. I have posted a few papers on here to so you can see what i have been doing. Feel free to remind me to update more.

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It’s Been a Month

It been a month since many others and I lost a very good friend. Jennie hoeft wasn’t just my friend she was my camp counselor. Since my first year at camp MASH (Make Arthirits Stop Hurting) at age eleven, I was scared because I didn’t know anyone and this would be the first time I’d be away from home. Jennie was the first person to greet me when I came off of the long Minnesota bus ride. The very first time I met her she ran up and gave me a hug. She had the brightest smile than anyone I ever knew. Since that very first day we grew closer, I barely left her side. She would never leave me out of activities even though I was in a wheelchair. Being said every time we used the elevator we would try to fit 15 girls plus a wheelchair into a small elevator leaving it to beep from being held to long. Everyday she would wake us up with her singing, but we didn’t care cause it was Jennie.
Her death has had a huge impact on people she knew and on the lupus committee. Jennie passed away from complications from Lupus. She was 27. The impact of Jennie showed on how many people attended to her funeral-over 500. Jennie was so young, even though she may have been in pain. She always had the brightest smile. She never let anyone down. She was always there for people.
My world and camp will never be the same, but I know we all will always live with her spirits in our hearts!
Jennie you taught me to live with high spirits and to always smile no matter what! From you favorite movie The Lion King Hakuna Matata and the circle of life, live without worry and live freely.

I leave you with our camp song that we always sing at our camp closing ceremony.

Sometimes in our lives

We all have pain, we all have sorrow

But if we are wise

We know that there’s always tomorrow

Lean on me when you’re not strong

And I’ll be your friend, I’ll help you carry on

For it won’t be long

‘Til I’m gonna need somebody to lean on

Please, swallow your pride

If I have things you need to borrow

For no one can fill those of your needs

That you won’t let show

You just call on me, brother, when you need a hand

We all need somebody to lean on

I just might have a problem that you’ll understand

We all need somebody to lean on

Lean on me when you’re not strong

And I’ll be your friend, I’ll help you carry on

For it won’t be long

‘Til I’m gonna need somebody to lean on.


  

Just one more day

The link

There is just 1 day left till the walk to cure juvenile arthritis aka JAM. Juvenile arthritis affect 300,000 children including me. In 2007 I was scheduled to have a stem cell transplant, but 2 weeks before I was scheduled to have I went into septic shock. Having going into septic shock I was in a coma for 2 months and in rehabilitation for another 2 months. After having rehabilitation I went back to school being able to go as much as I could while losing my toes, finger, hooked up to an IV, and losing my hair. But I stayed because I knew I had not just for myself, but for my family, my friends, classmates, teachers, nurses, doctors, and all the people I would meet in the future. I also stayed strong for the people I would have met when I am helping people in a similar story, I can’t wait to help people like me. You can help children just like me who have been diagnosed with arthritis by joining the walk to cure juvenile arthritis or by donating to the arthritis foundations. People with an autoimmune disease such as arthritis or lupus have struggles that a person shouldn’t have to struggle with such as showering, getting dressed, brushing their hair, walking, and spending time with friends and family. By donating you will help find a cure for arthritis or send a child to a very special camp. By walking you will raise awareness to this disease that not only affect adults but also children. Please donate or walk you have to do little but it will do a lot to those people with arthritis.

Please Help 

image.jpegThere are just 27 days till the walk to cure juvenile arthritis aka JAM. Juvenile arthritis affect 300,000 children including me. I’ve had arthritis since I was 6 months old in 2007, 2 weeks before I was scheduled to have a stem-cell transplant I went into septic shock. Having going into septic shock I was in a coma for 2 months and in rehabilitation for another 2 months. After having rehabilitation I went back to school being able to go as much as I could while losing my toes, finger, hooked up to an IV, and losing my hair. But I kept going because I knew I had not just for myself, but for my family, my friends, classmates, teachers, nurses, doctors, and all the people I would meet in the future. I also stayed strong for the people I would have met when I am helping people in a similar story, I can’t wait to help people like me. In November I was excited to find out that I was accepted into Edgewood College to do just what I want to do. You can help children just like me, who have been diagnosed with arthritis by joining the walk to cure juvenile arthritis or by donating to the arthritis foundations. People with an autoimmune disease such as arthritis or lupus have struggles that a person shouldn’t have to struggle with such as showering, getting dressed, brushing their hair, walking, and spending time with friends and family. By donating you will help find a cure for arthritis or send a child to a very special camp. By walking you will raise awareness to this disease that not only affect adults but also children. Please donate or walk you have to do little but it will do a lot to those people with arthritis.Walk to Cure Arthritis