The Walk to Cure Arthritis Juvenile Arthritis

So I was not sure I could participate the walk this year since I had an ankle fusion 11 days ago. I talked it over with my mom and we decided that I will participate. I have had Systemic Juvenile Rheumatoid Arthritis since I was 6 months old. I have been on medications and IV treatments, in and out of surgical and hospital rooms, and in/out of strollers, wheelchairs, and scooters since. In 2007 I was scheduled to have a stem cell transplant, but 2 weeks before I was scheduled to have I went into septic shock. Having going into septic shock I was in a coma for 2 months and in rehabilitation for another 2 months. After having rehabilitation I went back to school being able to go as much as I could while losing my toes, finger, hooked up to an IV, and losing my hair. When I as 13 I had my left hip replaced. And in 2016 I lost a really good friend/mentor to lupus. This year I turned 21 and January 16 I had my ankle fused and cleaned, and my tendons lengthen. But I stayed strong because I knew I had to not just for myself, but for my family, my friends, classmates, teachers, nurses, doctors, and all the people I would meet in the future. I also stayed strong for the people I would have met when I am helping people in a similar story, I can’t wait to help people like me. I’m the fall I plan to go back to college at the University of Minnesota Twin Cities to study Graphic Design so one day I can have a photography non-profit organization that will benefit children and families just like my family and I. You can help children just like me who have been diagnosed with arthritis by joining the walk to cure juvenile arthritis or by donating to the arthritis foundations. People with an autoimmune disease such as arthritis or lupus have struggles that a person shouldn’t have to struggle with such as showering, getting dressed, brushing their hair, walking, and spending time with friends and family. By donating you will help find a cure for arthritis or send a child to a very special camp. By walking you will raise awareness to this children. Please donate or walk you have to do little but it will do a lot to those people with arthritis. disease that not only affect adults but also children. Please donate or walk you have to do little but it will do a lot to those people with arthritis. So I was not sure I could participate the walk this year since I had an ankle fusion 11 days ago. I talked it over with my mom and we decided that I will participate. I have had Systemic Juvenile Rheumatoid Arthritis since I was 6 months old. I have been on medications and IV treatments, in and out of surgical and hospital rooms, and in/out of strollers, wheelchairs, and scooters since. In 2007 I was scheduled to have a stem cell transplant, but 2 weeks before I was scheduled to have I went into septic shock. Having going into septic shock I was in a coma for 2 months and in rehabilitation for another 2 months. After having rehabilitation I went back to school being able to go as much as I could while losing my toes, finger, hooked up to an IV, and losing my hair. When I as 13 I had my left hip replaced. And in 2016 I lost a really good friend/mentor to lupus. This year I turned 21 and January 16 I had my ankle fused and cleaned, and my tendons lengthen. But I stayed strong because I knew I had to not just for myself, but for my family, my friends, classmates, teachers, nurses, doctors, and all the people I would meet in the future. I also stayed strong for the people I would have met when I am helping people in a similar story, I can’t wait to help people like me. I’m the fall I plan to go back to college at the University of Minnesota Twin Cities to study Graphic Design so one day I can have a photography non-profit organization that will benefit children and families just like my family and I. You can help children just like me who have been diagnosed with arthritis by joining the walk to cure juvenile arthritis or by donating to the arthritis foundations. People with an autoimmune disease such as arthritis or lupus have struggles that a person shouldn’t have to struggle with such as showering, getting dressed, brushing their hair, walking, and spending time with friends and family. By donating you will help find a cure for arthritis or send a child to a very special camp. By walking you will raise awareness to this children. Please donate or walk you have to do little but it will do a lot to those people with arthritis. disease that not only affect adults but also children. Please donate or walk you have to do little but it will do a lot to those people with arthritis.The Walk to Cure Arthritis

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Help Me Fund My Life and Purpose

https://www.gofundme.com/funding-for-life-and-purpose

My life has been a roller coaster of ups and downs, but one thing that has always been consistent(even when I had to miss some); my education. I was diagnosed with Systemic Juvenile Rheumatoid Arthritis when I was just six months old. Many people believe that arthritis only affects the joints, but the reality is, it affects your whole world.

My arthritis has not only affected my joints, but also my organs, and mentality of life. When I was ten I was two weeks away from having a stem cell transplant when my life was turned upside down. I had developed sepsis. I ended up being a coma for two months and rehabilitation for another two. Sepsis caused my toes and left fingertips to be necrotic, making them turn blue and fall off, all in a span of a year. While I was in a coma the doctors ended up doing an exploratory surgery on my abdomen to see if they could find the cause of sepsis. An early removal of staples caused my abdomen to reopen and become infected. I ended up having a wound VAC on for a year to close the wound. During the span of 1-3 years of recuperating I went to school trying my hardest to be at school as much as possible.

I promised myself that no matter what I would finish school trying my hardest. I believed, no matter what it took I was determined to earn a degree, whether that would be a meteorologist, doctor, child life specialist, or a photographer. I had a dream and I was going to make it a reality! Middle school was a very hard time for me socially and mentally. I pushed through it with all my might, I just kept saying only 7, 6, and 5 more years till I’ll be a senior. I went to school even while I was healing from a total hip replacement. I was on so much pain medicine that I was driving into walls, and a full day at school became unsafe. So, again I was stuck at home when all I wanted was to be at school learning.

In high school, I once again had to conquer complications from my arthritis and my weaker immune system. My freshman year I had eight ear infections. I kept being put on antibiotics, oral than IV. I was going to school with a needle and a tube stuck out of my chest, but I was still determined. In the spring of that year I had a mastoidectomy. When the surgeons went to take it out they found that the infection had ate through my skull and I had cerebral spinal fluid leaking out of my ears. This put me on bed rest for two weeks where i had to lay flat. Though I persevered my way through high school, I still ended up missing a half of the school year. Even though I had As and Bs a couple Cs that year I was failed in two of my classes. I eventually made those classes up in summer school. I still feel as though, it was unjust to give me those since I was not given the same opportunities to keep up my grade. The rest of my high school career I knew I had to work extra hard. By the time I graduated in 2016 I had earned a 2.9 GPA and a spotlight student. I finally did it! Despite all the obstacles, I was able to get into my number one school; Edgewood College in Madison, Wisconsin.

At Edgewood I met many new people but felt secluded. I was even discriminated against by a teacher and not given the same opportunity of other students which affected my grade. I was five hours away from home. Every week my mom had to drive back and forth, sometimes in 24-hours for me to be able to get my 6 hour treatments for my arthritis or to spend one on one time helping and caretaking. The campus was really hard for me to get around on.

In the spring my family experienced a tremendous loss of my grandfather, as he was my step father’s employer his death was felt in multiple dimensions. Even though I had successfully earned a 3.2 GPA, all the harder life situations had me thinking, my family needed me closer and I was ready for an different college experience. I had came to the conclusion that I would like to transfer to the University of Minnesota-Twin cities for my Sophomore year of College.

Than of course, life throws another challenge for me. Money. At the end of June we found out I could not apply to the University of Minnesota-Twin cities because of a financial mistake early in the year by my school, I now owed over $5,500 to Edgewood. I can not work, my mom earns a unlivable wage as my PCA, and due to the major death in the family we were already not financially well. I decided I would take off the fall of 2017 so we could figure out what to do.

Another bend in the river, in the fall I found out I needed an ankle fusion in January and the another after that is healed. Still unable to pull together the cash I need to get my transcripts released and with the fusion, I now had to take off the spring of 2018. With a plan, my specialists and I have figured out how to get me better off physically to start at the U of M in the fall. I am excited to have a new chance to experience college with more physical ability or at least less pain. I have risen to the challenge over and over. I have proved with ultimate strength and courage that I am able to meet my goals with complete and utter determination.

I am asking for help. I still need to find the money to pay back Edgewood, so I can apply for the University of Minnesota-Twin cities and pursue my education in Graphic Design. I am asking for your financial support in helping myself to realize a very possible dream and goal, earning my degree in Graphic Design. With your support I can give back to our communities in one of the most beautiful ways, capturing life moments in my personal perspective of photo artistry. My ambition is to support many organizations who give back to others, such as the Arthritis Foundation, and in doing so live the life I have been fighting for all along, a life of purpose. PLEASE DONATE. THE PRIORITY DUE DATE FOR THE APPLICATION IS FEBRUARY 1ST.

Sincerely,

Arrian Madden an aspiring Graphic Designer.

After surgery

My room for the next 10 weeks

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Hi everyone,

Yesterday I had my big ankle surgery. I had an ankle fusion with an arthroscopic cleaning to get all the junk out (Which the found a piece a bone floating around.). I was able to wake up very quickly from a nearly 5 hour surgery. I was in major pain when I woke up, but then they came in and gave me another pain blocker. I will either be getting out today or tomorrow. My pain from the surgery is tolerable since I had to get multiple pain blockers in my leg. I will either be going home right away or I will be going to a rehabilitation place for a week to learn how to do things right since I have to be non-weight bearing for 10 weeks.

If you have any questions please ask.

Thank you,

Arrian Madden

Where Have I Been?

This fall I took off of college because I decided that Edgewood College was not the right school for me. At Edgewood College I was over looked a lot while I was there. I was even discriminated against by a teacher. Though while I was there I did meet many great people who will be there for me. In the summer I had decided that I was going to transfer to the University of Minnesota- Twin Cities just to be closer to my family. When I tried applying I found out my transcripts were on hold due to money not being paid. The money that was not paid was because of the refund check that they had sent me and didn’t know I was having a 3rd party helping me pay for school so when they found out that I had a 3rd party they decided that I needed to pay back the $4,000 that they refunded me. I am not able to work due to my arthritis, so this put a huge gap on us. Upon finding this information out I decided that I would not be going back to school this fall. While I have been off I have been helping out my family.

On September 21st I went in to the podiatrist to get my feet looked at since I had extremely dry skin on them. The podiatrist had me get x-rays of both of my ankles since I have had more than arthritis pain and they have fused to walk on the outer edge. The doctor came to the conclusion that I have a stress fracture on my left ankle, so I have been using a boot to help the fracture. Along with the boot, he gave a recommendation to go to see his partner. I had the appointment with his partner and he decided that I will need to get a bi-lateral ankle reconstruction surgery along with scoping of both ankles. To get more opinions I went to see three other doctors and they all said the same plus they recommend a fusion and an arthroscopy. When we went back to the guy who is going to be performing the surgery we agreed on doing all three of the procedures. January 16th I will be having an ankle scope and a debridement, subtalar joint fusion on my left foot for now. Of course the doctor said that even though this will not get rid of all the pain it will help to elevate some of it. He said the recovery period for this surgery is 4-6 months. I will have to be non-weight bearing for 10 weeks.

I know it has been long since I last updated you guys on my life. My life has been a bit crazy since I last updated. From now on I’ll try to update at least once a month. Thank you.